SPINAL CORD INJURY RESOURCES

 

National Resources

United Spinal Cord Association  https://www.unitedspinal.org/
United Spinal Association is dedicated to enhancing the quality of life of all people with a spinal cord injury or disease.

Christopher and Dana Reeve Foundation  https://www.christopherreeve.org/
Dedicated to advancing quality of life and discovering cures for spinal cord injury in the here and now.

Think First National Injury Prevention Foundation  http://thinkfirst.org
ThinkFirst offers evidence based injury prevention program for students of all ages through their network of healthcare-based chapters.  Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence, and falls.

Understanding Spinal Cord Injury  http://www.spinalinjury101.org/details/levels-of-injury

Living with a Spinal Cord Injury: A Guide for the Newly Injured    http://www.hollister.com/~/media/files/pdfs–for–download/uk/living–with–spinal–injuries–booklet–lr.pdf

 

Local Resources

Department of Health, Neurotrauma Supports http://health.hawaii.gov/nt/

Department of Health, EMS & Injury Prevention System Branch   http://health.hawaii.gov/injuryprevention/

Hawai’i Center for Independent Living http://www.hawaii-cil.org
414 Kuwili Street, Suite 102, Honolulu, HI 96817
Tel: (808) 522-5400 · Fax: (808) 522-5427

Our mission is to ensure the rights of people with disabilities to live independently and fully integrated in the community.

Hawai’i Disability Rights Center http://www.hawaiidisabilityrights.org
1132 Bishop Street, Suite 2102, Honolulu, HI 96813
Tel: (808) 949-2922 · Fax: (808) 949-2928

Our mission is to protect and promote the human, civil and legal rights of individuals with disabilities through the provision of information and advocacy.

Hawai’i Disability and Communication Access Board (DCAB)
919 Ala Moana Blvd., Room 101, Honolulu, HI 96814
Phone: (808) 586-8121
Email: dcab@doh.hawaii.gov

DCAB serves as public advocate of persons with disabilities by providing advice and recommendation on legislation, rules, policies, procedures, and plans relating to persons with disabilities and their civil rights or service needs.

 

DISABILITY BENEFITS


Hawai’i Medicaid Office 
https://medquest.hawaii.gov/

Department of Human Services of Hawai’i
PO Box 339, Honolulu, HI 96809
Phone: (808) 524-3370
Toll-Free: 800-316-8005
TTY: (808) 692-7182

For information on Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) visit: https://www.ssa.gov/disability/

Overview of Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI)
https://www.christopherreeve.org/living-with-paralysis/newly-paralyzed/when-and-how-can-i-apply-for-federal-social-security-benefits

Hawai’i Division of Vocational Rehabilitation Services         http://humanservices.hawaii.gov/vr/

Interested in applying for services:

O’ahu
Honolulu: (808) 586-4824
Kapolei: (808) 692-8604

Deaf Section: (808) 447-1454 (VP)
Blind Branch: (808) 586-5269 (V/TTY)

Hawaiʻi Island
Hilo: (808) 974-6444
Kona: (808) 323-0025

Kaua‘i
Līhuʻe: (808) 274-3333

Maui County
Maui, Moloka‘i, & Lana‘i: (808) 984-8350

 

DISCUSSION FORUMS

Inspired: Spinal Cord Injury Support Community   http://inspiredsciforum.com/

Inspired is a Spinal Cord Injury Support Forum which offers support for those affected by Spinal Cord Injuries and their families.

CareCure Community (SpineWire)                                        http://sci.rutgers.edu/

This site provides information and discussion forums for the spinal cord injury community. Also contains articles, lectures and other resources that might be of interest to people with a spinal cord injury. The site is provided by the Spinal Cord Injury Project of the W. M. Keck Center for Collaborative Neuroscience at Rutgers University for the spinal cord injury community.

Spinal Cord Injury Caregivers

Forum https://groups.yahoo.com/neo/groups/SCIC/info?guccounter=1
Private email and chat regarding the care and issues dealing with spinal cord injuries. The Spinal Cord Injury Caregivers Forum supports those caregivers who are immediate family members of those diagnosed with a traumatic or catastrophic spinal cord injury, and supports those with spinal cord injury.

Spinal Cord Injury and Paralysis Community
http://www.spinalcordinjury-paralysis.org/discussions

“Community Discussions” at the Christopher & Dana Reeve Foundation.

 

MEDICAL EQUIPMENT  

O’ahu

Aloha Medical Supplies
333 Keahole St. (Hawai’i Kai Towne Center), Honolulu, HI 96825
(808) 394-6960

ACE Medical Inc
2130 S. Beretania St., Honolulu, HI 96826
(808) 955-6969

Coastal Medical Supply
560 N. Nimitz Hwy., Honolulu, HI 96817
(808) 545-2500

Dauterman Healthcare-Mobility
1350 S. King St. Honolulu, HI 96814
(808)591-8860

Hawai’i

Rainbow Medical Supply
16-186 Kalara St., Keaau, HI 96749
(808) 982-3834

Kaua’i

GammieCare
3206 Akahi St. Lihue, HI 96766
(808) 632-2333

Maui

GammieCare
292 Alamaha St., Kahului, HI 96732
(808) 877-4032

Apria Healhcare
431 Alamaha St. Kahului, HI 96732
(808) 871-4267

Wheelchair Seating & Mobility Clinic  https://www.rehabhospital.org/programs/wheelchair-seating-mobility-clinic

Will assist you to get a new wheelchair/scooter through your insurance.

Contact Devin Otagaki at:
Phone: (808) 779-4032
Email: wclinic@rehabhospital.org

Transfer Training Workshop

 

HOME HEALTH CARE – private duty

Arcadia Home Health Services
(808) 440-3041
http://arcadia.org/

 

Attention Plus Care
(808) 739-2811
http://www.attentionplus.com/

 

Bayada Home Health Care
(808) 591-6050
https://www.bayada.com/

 

Castle Personal Care
(808) 263-5078
https://www.adventisthealth.org/castle/pages/services/castle-home-care/castle-personal-care.aspx

 

Kaiser Home Health Agency
(808) 432-4660

 

Kokua Nurses Home Health
(808) 973-1900
http://kokuanurses.com/

 

Wahiawa General Hospital Home Health
Serves Mililani to North Shore area.
(808) 621-4438

 

Wilson Homecare
(808) 518-3123
https://www.wilsoncare.com/

 

REHABILITATION/TREATMENT

 

Spinal Cord Injury Program

Rehabilitation Hospital of the Pacific                         https://www.rehabhospital.org/
Contact: Dr. Amendeep Somal at:
Phone: (808) 544-3325

 

SPORTS AND RECREATION

 

Access Surf                                                                 https://www.accessurf.org/

Access Surf is a nonprofit organization that provides beach access and therapeutic ocean activities such as surfing, swimming, snorkeling and shoreline floatation to kids and adults with any type of disability.

PO Box 15152
Honolulu, Hawai’i 96830
Phone: (808) 236-4200

 

Pure Light Racing                                                        http://www.purelightracing.org/events.html

Pure Light Racing organizes outrigger canoe paddling sessions for individual adapted paddlers in the Honolulu area, free of charge. The paddling sessions are open to anyone with a physical disability, regardless of age, ethnicity, income level or religion. Held on the 2ndSaturday of every month.

Email:info@purelightracing.org

 

Kihei Canoe Club- Adaptive Paddling Program

In collaboration with the County of Maui Department of Parks and Recreation, Halau Maui Nui O’ Kama and Access Sport America, Kihei Canoe Club hosts an Adaptive Paddling Program – a unique blend of people helping people.

Phone: (808) 879-5505

 

SUPPORT GROUPS

The Reeve Foundation Peer & Family Support Program(PFSP)

This group’s aim is to offer a peer to peer mentoring program for those experiencing a spinal cord injury. There is also information for friends, family members, and caregivers. You can gain emotional support and find local and national resources which may help with your recovery process. By matching you with a mentor of a similar age, location, type of paralysis, length of paralysis, etc., the PFSP allows you to gain wisdom and insight into the life experiences of the mentor.

Inspired Spinal Cord Injury Support Community

This is an interactive forum where members discuss any and everything related to spinal cord injuries. Members include survivors, spouses, family members, caretakers, and others who have a connection to the spinal cord injury community. Most topics are open for members and non-members to view and topics are arranged by category so visitors can more easily find information about the topic they are interested in. The website was founded by SCI survivors and fosters a positive and supportive environment while addressing challenging topics.

TECHNOLOGY

Hawai’i AT LOAN Program
Assistive Technology Resource Centers of Hawai’i
Link people with technology and empower individuals through its use.

414 Kuwili St., Suite 104
Honolulu, HI 96817
Phone: (808) 532-7112
Email: barbara@atrc.org

 

TRANSPORTATION

Charley’s Taxi- Medicab
1451 S. King St., Suite 300, Honolulu, HI 96814
Phone: (808) 531-1333
www.charleystaxi.com

 

Persons with Disabilities Parking Permit
Disability & Communication Access Board
Applications also available at Satellite City Halls
919 Ala Moana Blvd. #101, Honolulu, HI 96814
Phone: (808) 586-8121

http://health.hawaii.gov/dcab/

 

HandiVan

A public transit service for persons with disabilities who are unable to ride the City bus service, The BUS.
Customer Service, Reservations, & Cancellations/Late Pick Up
Phone: (808)456-5555
TTY: (808)454-5054

 

Handi-Van Eligibility Center

1100 Ward Ave., suite 835, Honolulu HI 96814
Phone: (808) 538-0033
For more information on the Handi-Van: https://www.honolulu.gov/rep/site/dts/dts_docs/TheHandi-Van_Eligibility_Brochure.pdf

 

The Bus – O’ahu Transit Services

Bus Pass Office                      (808) 848-4444
Customer Services                  (808) 848-4444
Schedules and Routes             (808) 848-5555

 

REHAB Hospital Driving Evaluation & Training Program

Program to help maintain safe driving skills and determine if you need any adaptive equipment to drive safely.  This program is for people with a medical condition that possibly impairs driving ability.

226 Kuakini St. Honolulu, HI 96817
(808) 544-3310