National Core Outcomes for Children & Youth with Special Health Care Needs (CSHCN)

  1. Families of CSHCN partner in decision-making at all levels and are satisfied with the services they receive.
  2. All CSHCN receive coordinated, ongoing, comprehensive care within a medical home.
  3. All families of CSHCN have adequate private and/or public insurance to pay for the services they need.
  4. All children are screened early and continuously for special health care needs.
  5. Community-based service systems are organized so families can use them easily.
  6. All youth with special health care needs receive the services necessary to transition to adult life, including adult health care, work, and independence.

For more information, see “Achieving and Measuring Success: A National Agenda for CSHCN” on the federal Maternal and Child Health Bureau website at

“Children with special health care needs” are those children who have or are at increased risk for chronic physical, developmental, behavioral, or emotional conditions and who require health and related services of a type or amount beyond that required by children and their families generally. (Definition from the Maternal and Child Health Bureau, 1995.)