Children with Special Health Needs Branch (CSHNB) is working to assure that all children and youth with special health care needs (CSHCN) will reach optimal health, growth, and development, by improving access to a coordinated system of family-centered health care services and improving outcomes, through systems development, assessment, assurance, education, collaborative partnerships, and family support.
Under the Title V Maternal and Child Health Block Grant, CSHNB has the responsibility to “provide and promote family-centered, community-based, coordinated care for children with special health care needs and to facilitate the development of community-based systems of services for such children and their families.”
Title V Performance Measures for CSHCN:
1. National Performance Measures
- % newborns who have positive screens who received timely follow up to definitive diagnosis and clinical management for mandated metabolic conditions.
- % newborns who have been screened for hearing before hospital discharge.
- % CSHCN whose families partner in decision-making at all levels and are satisfied with the services they receive.
- % CSHCN who receive coordinated, ongoing, comprehensive care within a medical home.
- % CSHCN whose families have adequate private and/or public insurance to pay for the services they need.
- % CSHCN whose families report the community-based service system are organized so they can use them easily.
2. State Performance Measures
- % of parents of children 10 months to 5 years who report completing a standardized developmental and behavioral screener (SDBS) during a health care visit in the past 12 months.
- % of CSHCN, 12-17 years of age who received all needed anticipatory guidance for transition to adult health care.
State Laws Mandating Program Services
- HRS §321-51 to 54 – Children with Special Health Needs
- HRS §321-291 – Newborn Metabolic Screening
- HRS §321-351 to 357 – Infants and Toddlers
- HRS §321-361 to 363 – Statewide Newborn Hearing Screening Program
- HRS §321-421 to 426 – Birth Defects Program
Patricia Heu M.D., M.P.H., Branch Chief
Children with Special Health Needs Branch
Hawaii Department of Health
741 Sunset Avenue
Honolulu, Hawaii 96816
Phone: (808) 733-9070